ARTICLE | Politics, Policy & Law

Confluence of interests

Patient advocacy group EveryLife Foundation’s funding and focus

October 31, 2016 7:00 AM UTC

Pharmaceutical industry funding does not create an inherent conflict of interest for patient groups, according to Emil Kakkis, president of the EveryLife Foundation for Rare Diseases.

Kakkis, also president and CEO of rare and ultra-rare disease company Ultragenyx Pharmaceutical Inc., founded EveryLife in 2009 and continues to lead the foundation. ...

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Ultragenyx Pharmaceutical Inc.