ARTICLE | Politics & Policy
NORD gets FDA grant for natural history studies
December 11, 2015 2:29 AM UTC
The National Organization for Rare Disorders received a $250,000 grant from FDA to support 20 natural history studies in rare diseases. NORD said it will use a lottery system to choose the rare diseases it will investigate.
The studies, which will collect longitudinal data to characterize progression and patient perspectives in rare diseases, will be sponsored by disease-specific patient groups. ...