BioCentury
ARTICLE | Regulation

Foundation for inclusion

How the National Kidney Foundation is driving patient-centric R&D

August 11, 2017 10:23 PM UTC

Hosting a patient-focused drug development workshop was the National Kidney Foundation Inc.’s first step in assuming the role of facilitator to collect patient perspectives that will shape R&D for kidney disease.

On Aug. 4, the advocacy group hosted a meeting of patients and caregivers, senior FDA leaders and drug company executives to discuss patient perspectives on C3 glomerulopathy (C3G). C3G is a rare condition caused by deposition of fragments of complement 3 (C3) protein in the kidneys...