Preferential practices

Facing calls from its members and patient groups for a framework on how patient preference studies for drugs should be designed and executed, BIO enlisted Parent Project Muscular Dystrophy to help create a set of general guidelines and recommendations that stakeholders can use to design and execute disease-specific patient preference studies.

Patient preference research is grounded in the notion that patients have distinct preferences about the trade-offs and risks inherent in medical decisions, which are frequently different from the choices physicians would make...